tag:blogger.com,1999:blog-11602694.post4824940888413774348..comments2023-07-05T02:44:01.406-05:00Comments on Heaven Sent: ImageLisa @ Heaven Senthttp://www.blogger.com/profile/15795670644423933851noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-11602694.post-37288259989894217102012-07-23T21:30:30.450-05:002012-07-23T21:30:30.450-05:00I've been thinking about you. You are an incre...I've been thinking about you. You are an incredible mother. <br /><br />StephStephanie Wilson she/her @babystephhttps://www.blogger.com/profile/02703122439142892617noreply@blogger.comtag:blogger.com,1999:blog-11602694.post-50624629663846190342012-06-18T14:20:36.265-05:002012-06-18T14:20:36.265-05:00I remember those days of fear and like I had faile...I remember those days of fear and like I had failed Trinity, but she loves her wheelchair! When she's in her chair it's like nothing else matters to her. We vision all these great dreams for our kids and all the achievements they will have in life, but something that I have had to come to terms with is that my dreams where not God's plan! A song I heard at church last night had a phrase in it, "He makes beautiful things out of dust!", and what a beautiful thing He has and is making in our kiddos!!Mirandahttps://www.blogger.com/profile/09513493332781581853noreply@blogger.comtag:blogger.com,1999:blog-11602694.post-74614024465154497212012-06-16T21:34:15.466-05:002012-06-16T21:34:15.466-05:00I just thought I would chime is as a mom with an a...I just thought I would chime is as a mom with an almost 7 year old with SB. Caleb got his chair when he was 2 1/2 and it was without a doubt the best gift we could have given him. It changed his life. And the chair didn't mean we were giving up on walking. Caleb eventually gained enough strength to walk very well with AFO's and a walker. Tethered cord surgery in April has taken that ability away, either temporarily or permanently, and I have found myself back at the beginning trying to make peace with the wheelchair again. And it comes in waves. But at the end of the day my Caleb is a happy kid and he loves his wheelchair and the freedom it gives him. If he isn't sad, then why should I be? Your Brooklyn is beautiful.Cassiehttps://www.blogger.com/profile/08634885711864748059noreply@blogger.comtag:blogger.com,1999:blog-11602694.post-31502601499471602982012-06-15T18:00:14.784-05:002012-06-15T18:00:14.784-05:00I've loved reading your blog and following Bro...I've loved reading your blog and following Brooklyn's story. I honestly don't remember how I found it, but it was before she was born I think someone linked it on Facebook. Anyways, I love that you are so real in what you are feeling and dealing with, not just for your sake or Brooklyns, but I am sure there will be other Mama's who will read this someday on a similar journey and it will mean SO MUCH TO THEM! To know they aren't alone, that someone has been where they are. Of course your Mama's heart hurts, we all want our children to be happy. <br /><br />My struggle is not the same, but having adopted a little girl with CP who can walk I find that I have similar feelings about her inability to walk "normally". People stare at her as she limps along with her little butterfly leg braces. People gasp when she trips and falls and look at me like I am a terrible devil-woman when I let her get up by herself because I know she is a big girl and doesn't WANT HELP, but they think I should run to her and brush her off and baby her or something. <br /><br />I just want her to not have to deal with the stares and questions and whispers….but I can't fix that for her. I can only help her be the best she is capable of and I'm trying to find a way to make peace with that so that she can make peace with that.<br /><br />Thanks for this post. I am not a spina bifida mom, but it still very much resonated with me.Lorahttps://www.blogger.com/profile/12514992909586849215noreply@blogger.comtag:blogger.com,1999:blog-11602694.post-23275336277022501372012-06-15T17:08:56.735-05:002012-06-15T17:08:56.735-05:00I feel your struggle! My little SB rock star is m...I feel your struggle! My little SB rock star is my 7th child and he's just 5 months old. I look at the many possibilities and already know Mason won't walk. We've got family making a bumbo into a wheelchair so he can get mobility as soon as possible once he's ready. Mason's lesion began at L2 and went down to the sacrum. He can pull his legs in at the hip but can't push them straight again, nor can he keep them up, they fall to the side once he pulls them in. So many SB children have more movement. It's hard some days to already know we're not going to make it to walking in any form. <br /><br />Acceptance does come in waves. I have hard days when I see all his 6 older siblings can do that he won't be able to do and I cry. God planned Mason's life and created his body perfectly for that plan. I know that. I still have to be reminded of it often though!Tristanhttps://www.blogger.com/profile/14483248387092516827noreply@blogger.comtag:blogger.com,1999:blog-11602694.post-91027849948332708582012-06-15T16:16:31.780-05:002012-06-15T16:16:31.780-05:00Lisa, One of the lines from my favorite songs is S...Lisa, One of the lines from my favorite songs is Strength will Rise as we wait upon the Lord and you and Brooklynn will be strengthen from Him. My philosophy is when you can't see what He has done for you in your life, just think of you life as a Rearview mirrow and look in it and see the wonders he has preformed, and you will go, Oh My God, Look!, What He has Done! And if she need a wheelchair to get her around, let it Be! At least She is seeing the World! Mary AnnAnonymousnoreply@blogger.com